My midwife called me with the results of the blood tests. Seth had a blood clot in his cord. I have MTHFR (the mother-father gene) or (methylenetetrahydrofolate reductase). This gene causes blood clots, misscaraiges, strokes, heart disease…
This MTHFR gene does not allow amino acids to convert into other amino acids and eventually leads to important protiens not being able to be made. Its amazing that Seth made it to the size that he did before he passed away. Ussually babies of mothers who have MTHFR die in early weeks as an early misscariage.
There are many risks to having more babies. They could get a clot again, I could misscarry before I even get to far, they could be born with spina bifida, autism, (any type of neural defects). I am praying for my next pregnancy in the future to be healthy. My family has had a lot of healthy pregnancies. Theres no reason for me to surpass those risks with the treatments there are today.
I was told when I am ready to have a baby again that I need to have a “pre-pregnancy consultation” to make sure Im taking high doses of folic acid before I get pregnant. I will need to take asprin and possibly other blood thinners or extra B vitamins.
Its a 50/50 chance. Its terrifying. To know that my next pregnancy will be lived out in total fear= TERRIFYING. I was sick to my stomach all day waiting for a phone call. Im glad to know that we have the chance to take precautions for the next one but its so scary to know that I could possibly have multiple losses. As much as I dont want Seth to be alone up there, he has Jesus, I dont want to send him more brothers and sisters for my sanity’s sake.
I could or could not have problems having more children. my midwife told me “each pregnancy is a risk and you must be prepared for what might happen”.
Yes Im a little angry. So many people spit out kids with no problems and I have a genetic disorder that could stop my babie’s developement at any time that it decides to silently attack. I will be worried until the last minute of my next pregnancy. I would probably be happy to induce at the moment my doctor says im ready. Its scary, I dont want to hurt any of my children.
Now I know… Life is short. I am different.