Tag Archives: Methylenetetrahydrofolate reductase

Aside

Good thoughts, good thoughts lol. Im just all paranoid and freaked out. I called this new OB that I was recommended to see by someone who has the same condition as me. Of course Doctors are too good to talk to their … Continue reading

You love me anyway

Today I have been more than anxious. I suppose it is my anxiety getting the best of me. I have had bad chest pain for days. Thankfully I do EKG’s for a living, so I did one a couple weeks ago when I was having chest pain and of course it looked fine. It’s just scary. My body has had stabbing pains here and there since I got home from the hospital. Headaches, hard to breathe (feels like my throat is closing and I can’t get a breath), fatigue, numbness, clammy. I can’t stand it, It makes me feel so helpless and especially when I’m at work I just want to go home and cry so I will fall asleep and forget that I’m feeling anxious. I am scared of doctors, even though I talk to them all day. I do not want to take medicine that will turn me into a zombie or gain weight. It sounds selfish and childish huh? Who would not want to feel better? I really do want to feel better but I feel like there has to be some other way. Can’t I control it myself? I have been fighting this for years. Actually, it’s been a long scary battle since about the age of 10. It’s terrifying, to live in fear. I fear death, illness, accidents, loneliness, infertility, instability… It doesn’t go away.  I try to breathe, I try music, and I try praying, reading…. I’m not going to lie, knowing my Jesus is near helps but why doesn’t he take it away? Will I have to live like this forever? I really fear now that I will “throw a clot” in ER nursing terms (lol). This MTHFR, which I shouldn’t worry about like I do, really does have effects on my life, such as never using birth control (what if I have a kid when I’m forty??? I don’t really want that), being at risk for other medical issues- it’s just scary.

I bought this music from “Bed Bath and Beyond”

It’s beautiful. I listened to the Yellow one when I was pregnant and when I was in labor. It’s hard to listen to that one again because I vividly remember my labor and the hospital and Seth when I hear that CD. I bought the other two tonight because I liked the first one so much. I think they are the coolest CD’s I’ve ever bought. I guess I’m turning into a real mom- listening to old boring fogies piano music that has no words lol :).  They are just so beautiful and calming. I am such an art hippie at heart. I could sit and bask in art and music any day. I will listen to almost anything and look at almost any artwork and be amazed and caught up. I can critique and find deeper meanings for hours. I can be inspired and let my mind wander for hours. It’s beautiful. I miss making time for art. I miss painting and drawing. I pray I will never forget to pick it back up when I am all finished with school (school and work and husband eat my time away).

Today was my mother-in-laws birthday. Happy birthday Krista! Thank you for giving me my wonderful husband! Steven and I picked out this cookie jar for her yesterday :D, it’s so cute.

She told me tonight that she bought P90X so lol.. maybe I can join in and lose this baby fat. That will be fun (but hard core).

I also bought my mom her birthday present tonight, of course I can’t tell yet what it is but yeah, it’s almost here momma, November 28th!

I finally finished my first class at Keiser! I am so excited. I think I got an A but I have to wait till grades are posted, I hope I got an A! I start my next class on Monday so I WILL enjoy this weekend off work with no school :). I am going to practice crocheting, maybe see an old friend this weekend, clean, and maybe put up the Christmas tree. (I am still working on my book from Angie Smith. I know it’s taking me forever but I’m almost done, I’ve just been so busy with school, work, choir, crocheting (or trying to learn how). It’s also a book that you cannot read all at once, I cry every time I read more of it.

I really am getting anxious about Seth’s headstone coming in. I want to see it. I also am waiting for a call from the hospital to see the pictures they took of Seth; they are waiting for them to come in. I’m not sure I’m ready to see them but I miss him and I want to see him one more time. I’m sick of looking at the same few pictures I have, I feel like I need to see him some other way, it makes it seem like he’s still around if I can see him in some more pictures other than what I have seen over and over these last couple of months.

There is no way we are ready to have another baby but I can’t stand seeing all of that baby stuff we have sitting there not being used. I don’t want to give it away. I want to use it. I want to use every bit of it up till it’s worn out completely. I don’t want to put anything away. I want it up.

My dear next child, you are not a replacement and I don’t want you ever to think that. When God decides it is the right time for you to come along, we will love you with all of our hearts. You will change my life forever. Don’t ever give up. Don’t ever be weak. You were made for God’s glory. You were made to survive and be here for your mommy and daddy. You were not made to help me forget about Seth. You will not fill the void Seth left. There is a reason he left a mark. Only people who impact others in a significant way will leave a mark that makes you think of them EVERY DAY- Seth was one of those people. There’s a reason I think of him every day, because he changed me. He gave me the desire to have more kids. I always said no more when I was pregnant with him but look; here you are, waiting for God to send you to me. Keep me busy my next child, keep me focused and waiting for you. Will you take away some of my anxiety? When you decide to come, don’t let me fear through my pregnancy. Just come, healthy and beautiful. Boy or girl, defect or not (although I will definitely not complain for a healthy peewee), I will love you just the way you are because God made you fearfully and wonderfully just for me. You will be my love. You already are.

Love,

Momma.

I have not forgotten about you Seth nor will I ever. You were my first. You are the reason I’m here today. You are my story. You are my life. I breathe so I can think of you. You are my son. I am your mom. I promise to never forget you. I could never go one day, not even one second without you crossing my mind. You were the baby we were all anxiously waiting for, the one we anxiously held in our arms, and anxiously said goodbye to. Sometimes I feel like phone-ing you in heaven and just chatting. I just want to know how you’re doing even though I know you’re being taken care of perfectly; it’s the mom in me. Are you eating right, are you sleeping enough, are you cold? Stupid questions but that’s what earthly moms ask their earthly children :). You wouldn’t know because you were too beautiful for earth. Tell your poppa, my poppa and baby Eli Rolle we miss them.

All the reasons we change
The reasons I doubt
And why do loved ones have to die?
But You love me anyway
It’s like nothing in life that I’ve ever known
Yes You love me anyway
Oh Lord, how You love me

I am the thorn in Your crown
But You love me anyway
I am the sweat from Your brow
But You love me anyway
I am the nail in Your wrist
But You love me anyway
I am Judas’ kiss
But You love me anyway
See now, I am the man who yelled out from the crowd
For Your blood to be spilled on this earth shaking 
ground
Yes then, I turned away with a smile on my face
With this sin in my heart tried to bury Your grace
And then alone in the night, I still called out for You
So ashamed of my life, my life, my life
But You love me anyway
It’s like nothing in life that I’ve ever known
Yes,You love me anyway
Oh Lord, how You love me

This is not my home

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Today I worked 6am-2pm. I was sooo tired, I still am. I started off my routine EKG’s today by first of all  having to go to the OB floor because the cardiac overflow is on one side of that floor and the birthing suites are on the other.  On my way to that floor a big bellied woman stopped me and asked where the birthing suites are. I looked over at her big belly, packed bags, and swollen face, and jittery husband. I said oh…. and couldn’t get anything more out. Finally after what seemed like eternity I spit out, just follow me, I’m going there. She seemed really scared. I asked if she was being induced on this early morning and she replied yes, this is my second but I’m still so nervous. I wanted to excitedly interject with “I had my son a month and a half ago and it was a breeze, he was beautiful but he passed away.” Oh, I’m sure that would make her feel better! So I just quietly took them to the elevator and on the awkward ride up she said “So… Are the birthing suites nice here”…. I don’t know I only lost my son in one of those… What was I supposed to say? I actually said – “Yeah I’m sure they’re nice, the ones in the cape are big.”…. when I rushed off the elevator I felt like I was gonna get sick everywhere but I felt better a few minutes later. I went to the first room and get the EKG and as Im pulling the leads off and the P.A. comes in and asks the patient how he was doing and he starts to sob- “My wife just died a few weeks ago. We were together for 60 years and we lived in assisted living together and now Im lonely. I blow her a kiss to her picture every day. I asked God to take me to her but He dosn’t listen. He does not care about me.” I cried. Every time I said something he talked over me so i just let him talk about how beautiful his wife was and about all his grandkids. The P.A. finally spoke up and I left the room quietly.

Later I went to the ER to help a co-worker who was getting slammed, we were over our bed count. We are a heart and kidney hospital so we rarely get trauma unless its a true emergency and the patient CANT make the drive to LEE. Well, we got a traffic trauma alert today and my co-worker came out of the room and said he didn’t make it. His chest was all deformed and his bones were all mushed to one side from doing CPR for so long. I believe he was only in his 20’s. It was sad. He was in that room for a long time before they moved him to the morgue.

I walked to triage because one of the nurses wanted to talk to me. We sat down between triaging patients and she told me her story. She has MTHFR (homozygous), Factor 5 Leiden, and thrombosis. She said since she was 19 she has had 2 pulmonary embolisms and 5 DVT’s. She gave birth to a wonderful boy 7 years ago who would not have made it if it wasnt for her supportive doctors. She said she went against advice and carried the baby to full term (she did start labor at 7 months but they were able to stop it and she had to be on bed rest for 2 months). She got her tubes tied because she could not safely be on any birth control and her doctors advised her not to have another child for the sake of her and her baby’s life. I could tell she wanted more children and she was saddened by it. She gave me the name of a specialist OBGYN who dealt with her MTHFR (I’m C677T heterozygous) and the name of a hematologist that she and her family has seen. Its good to finally find a doctor who knows what there talking about.

Now… I want to have a baby but Im actually praying that I dont get pregnant too soon because I dont want to miscarry from this disorder within the first three months that Im waiting to get insurance and go see these specialists. Yeah, Im mad, I have to wait 90 days to get insurance since I moved fom PRN to part time. Ugh, Ive been an employee there, why does it start all over :(. If I do get pregnant and make it that far I pray that my insurance would still take me, its not my fault that waited 90 STUPID days!

I didnt get to crochet tonight because I made food for the week for work and Im working on homework now so hopefully tomorrow. I cant wait till I have off Friday, Im so tired.

Friday will be hard. My friends wedding is that day. Thats the day Seth was supposed to be born November 11,2011… It will be hard to go to the wedding honestly. I really want to be there but It will be so hard. I know I’m going to cry a lot on Friday. I just cant wait to relax this weekend though.

I miss you son. I cry at random moments and long for you all of the time. You make me emotional but you make me appreciate life and all of the beautiful people I have and all of the wonderful things I have. I look at people differently. I no longer judge by looks. I honestly ball my eyes out when I see the homeless on 41 or in the hospitals on these cool nights. I cry when I think about how grateful I am to have such a loving mother who has been my best friend all these years whether or not either of us realized it. I cry when I think of all of the sleepless nights I could have had with you Seth. All of the truck toys that I may have stepped on while getting up to check on you in the middle of the night, All of the tractor rides with your daddy, All of the hugs and kisses and excitement, poopey diapers, warm spit up…. I miss it. I miss what I never had.

God does hear me. He cries with me. He wept when Lazuraus died because he felt the pain that Mary and Martha felt, He knew it hurt. He knows it hurts.

He is here to stay. Seth is there to stay. This is not my home.

We pray for blessings
We pray for peace
Comfort for family, protection while we sleep
We pray for healing, for prosperity
We pray for Your mighty hand to ease our suffering
All the while, You hear each spoken need
Yet love us way too much to give us lesser things

‘Cause what if Your blessings come through raindrops
What if Your healing comes through tears
What if a thousand sleepless nights 
Are what it takes to know You’re near
What if trials of this life are Your mercies in disguise

We pray for wisdom
Your voice to hear
And we cry in anger when we cannot feel You near
We doubt Your goodness, we doubt Your love
As if every promise from Your Word is not enough
All the while, You hear each desperate plea
And long that we’d have faith to believe

‘Cause what if Your blessings come through raindrops
What if Your healing comes through tears
What if a thousand sleepless nights
Are what it takes to know You’re near
And what if trials of this life are Your mercies in disguise

When friends betray us
When darkness seems to win
We know that pain reminds this heart
That this is not, this is not our home
It’s not our home

‘Cause what if Your blessings come through raindrops
What if Your healing comes through tears
And what if a thousand sleepless nights
Are what it takes to know You’re near
What if my greatest disappointments
Or the aching of this life
Is the revealing of a greater thirst this world can’t satisfy
And what if trials of this life
The rain, the storms, the hardest nights
Are Your mercies in disguise